A Reflection on the Year

photo credit: Shandi-lee via photopin cc
I will always look back on the year 2012 as a year of life changing decisions, and a year of following my dreams.  I am so grateful to be doing something that I love to do, and something that I'm completely passionate about.  I love working with children, and I love learning about the complexities of autism.  I had dreamt about starting my own practice for a few years, but this year was the magic year when my dream would become a reality.

I love that I get to work with these amazing children and their families, I am so grateful for all the families that have welcomed me into their lives.  I am grateful for the relationships I have with the families that I have worked with in the past and the families I am currently working with.  My life is definitely better because of each and every one of you.

I hope that as you look back on 2012, you can say that it truly was a good one.  One of growth and learning, one of challenges and accomplishments, one of happiness and love.

HAPPY NEW YEAR!!!

Joy Mano
Utah PLAY Project Home Consultant
Early Intervention Treatments for Children with Autism


Autism Therapies Comparison

This is a great form that the PLAY Project has for parents who are interested in learning the differences between Play-based therapies and Behavioral therapies.
Joy Mano
Utah PLAY Project Home Consultant
Early Intervention Treatment for Children with Autism

Get Involved - Autism Council of Utah



If you are looking for ways to get involved in the Autism Community in Utah, this is a great way to do it.  The Services Committee is having a meeting and you're invited!  The Services Committee is a forum for parents and providers to meet and learn about services in the community, identify gaps in services, and research available services that are not listed on the Autism Council website.


Date: Monday, January 7, 2013
Time: 10am - 12pm
Location: 1385 S. STATE ST. (HUMAN SERVICES/DWS BUILDING)

I will be there, and I'd love to meet you!  Please come and join us.

Joy Mano
Utah PLAY Project Home Consultant
Early Intervention Treatment for Children with Autism

Merry Christmas!

MERRY CHRISTMAS!!!
MAY YOU HAVE A DAY FULL OF LOVE AND MEMORIES TO CHERISH

With Love,
Joy

Theory of Mind and Autism

photo credit: Olaf_S via photopin cc
When I was first learning about Theory of Mind, I was told a little scenario to help me understand.  It went something like this.

Two children are in a room with an adult.  The adult puts a teddy bear in a red box.  Child 1 leaves the room.  Child 2 watches the adult move the teddy bear from the red box to a green box.  Where will Child 1 think the teddy bear is?

A young child (usually 0-3 yrs old) will say that Child 1 will think that the bear is in the green box because they know that's where it is.  A child who has developed theory of mind will know that Child 1 will still think that the bear is in the red box because Child 1 did not see the adult move the bear.

Children with autism, oftentimes have a very difficult time with Theory of Mind.  This is one of the reasons that participating in pretend play, and talking about emotions and feelings is important for children.  However, developmentally, a child needs to be ready to participate in pretend play...trying to get a child to participate in pretend when they are not at that functional developmental level yet,  will not be beneficial.

Here is an article that I enjoyed about Theory of Mind.

Joy Mano
Utah P.L.A.Y. Project Home Consultant
Early Intervention Treatment for Children With Autism

Christmas Chaos and Autism

Mano Family Christmas 2000 (I'm the one holding the baby, next to my Grandma)
Can you believe that next week is Christmas?  This year has just flown by.  I love the holidays, I love spending time with my family, and I love our family traditions.  For some, the holidays are our favorite time of year, but for others it can be too much.

I want to talk about a few reasons why the holidays can be rough for a child with autism, and some ideas you may want to consider as Christmas and New Years are coming soon.

Most children with autism are more successful when their life is predictable.  They usually like routine, schedules, and familiarity.  So here are a few reasons why the holidays may cause stress for them.
  • parents are stressed about the holidays
  • school routines are disrupted by holiday events
  • school is out for a week or two
  • the house is decorated differently
  • lots of sugary treats around (they probably won't complain about this part, but still it's a change in diet)
  • everywhere you go, there seems to be a crowd of anxious people (stores, driving, family gatherings)
  • there are lights everywhere (a lot of kids actually enjoy this part, but to some it may be overstimulating)
  • parties to go to
  • late nights
  • weather changes
  • weather changes = wardrobe changes
  • a big scary guy with a white beard and red suit keeps following you around (everywhere you go, there he is)
  • I'm sure this list could go on and on
Of course you can't eliminate a lot of these things, but there are somethings that can help a child to cope through these changes.  My advice would be to predict the times that are going to be the most difficult and make a plan of action.  

I will give you an example.  On Christmas Eve, my whole family (extended family included) gets together.  There are usually about 50-60 of us at my Aunt's house.  We have a nice dinner, people are everywhere upstairs and down.  After dinner we have a Christmas Talent Show where each family participates.  Then we end it with a pinata for the kids.  The whole thing screams over-stimulation.  Here are some things I would do to help plan for this night without having to miss one of the best nights of the year.
  • Have a designated room in the house that could be a "quiet spot" when it's needed.
  • Have some toys/dvds/music in there that are favorites.  This is a stressful time, you want some comfort zone activities that your child can enjoy.
  • Arrive a little early so your child can get used to the home if they're unfamiliar with it.  That way you're introducing things a little at a time instead of all at once.  First the new environment, then all the people.
  • If being around a lot of people is overwhelming for your child, have people go in one or two at a time to interact with your child.  You still want them to have some social time that's enjoyable.
  • If your child can tolerate the noise and people, just be sensitive to when they need a break, and allow them to have it.
  • Our Christmas Eve party is a tradition, so we do the same thing every year and we have it at the same place.  We have a lot of pictures, so I would make a picture book about Christmas Eve.  Then a week or two before the party, I would spend time (every day if possible) looking through the pictures and describing how the night goes.  Even if your child has delayed language, seeing the pictures and having you describe it is still important.  This will help things become more predictable.  
  • During the party, I would make sure I still had the picture book with me.  Then during transitions I could get the book out and talk about what's going to come next.
This blog is still new, so I'm not sure who's reading it, but I would love to hear what you do for the holidays to help cope during the chaos :)

Joy Mano
Utah PLAY Project Home Consultant
Early Intervention Treatment for Children With Autism

Setting Events - Figuring out Difficult Behaviors

photo credit: blmurch via photopin cc


When I was the Program Director at a Care Center for people with disabilities, I worked a lot with managing difficult behaviors.  I was usually called in to work with someone after the staff had already been working with that person for a while, and they needed help.

Sometimes figuring out why someone is doing something is difficult, especially if that person does not talk.  Their behavior is how they communicate, and our responsibility is to figure out how to interpret their behavior.

You may be familiar with the Antecedent-Behavior-Consequence form that is used a lot when parents/professionals are faced with difficult behaviors.  If not, I will definitely blog about it another time.  With that form, you look at what happened right before the behavior, what the behavior looked like, and what happened immediately following the behavior.  This is a good way to start noticing patterns, and how to help an individual.

One thing that sometimes is missing is the Setting Events.  These are things that may have happened previous to the antecedent, and could be anything from medication changes to going to bed late or even having a bad dream.  We've all had it happen to us, where our day is thrown off because of something that may have happened the night before, or maybe we got a phone call that made us upset, but we don't erupt until hours later when everything appears to be unrelated.  Those are Setting Events.

Here is an example of why understanding Setting Events can be important.  There was one day that one of the residents (I'll call him Simon) was refusing to eat.  The staff did everything they could think of to get him to eat, but he would not eat.  The dining hall was almost empty, and Simon had not even started eating.  This was a concern because of health issues, so it was important that Simon ate his breakfast.  It wasn't uncommon for Simon to refuse to eat, but generally the staff could get him to eat without involving me. For some reason today was different.

I'm not totally sure everything that the staff tried before they asked me to come assist, but I know they had been trying for probably about an hour.  

When they came to me to ask for help, I immediately asked them if Simon had a belt on.  Now, to an outsider, that probably seems like a very odd question to ask in this situation.  What does a belt have to do with eating breakfast?  The staff said that he did not have a belt on, so I asked them to get him his belt and if he is still refusing to eat then I would come in and help.  I'm sure that they thought I was crazy, but a few minutes later the staff reported that Simon was eating.

So what does a belt have to do with eating breakfast and how did I know that that was the reason why Simon wasn't eating before I even went to check on him?  I had worked with Simon for a couple years, and I knew that he had a very rigid routine that he would follow every day.  If that routine was interrupted, he wouldn't complain, but he would start over.  Simon usually moved at a very slow pace which was opposite the pace that the staff was working at, and oftentimes Simon would be rushed.  Usually rushing Simon had the opposite effect because he would have to start over, so in essence he took even longer.  I had noticed a few days/weeks prior to this incident that Simon had become very attached to his belts, and he always had to be wearing a belt.  If he did not have a belt, then his day would be ruined.  

So one of the Setting Events was that Simon was rushed and he did not have a belt on.  The Antecedent was that he was given breakfast, the Behavior was that he was refusing to eat, and the Consequence was that the staff did everything they could do to try to convince him to eat.  You can see why Setting Events can be important, and why being aware of routines, environment, etc., can be key to your observations.  Without the setting events, our conclusion could have been he was avoiding eating, maybe it was a sensory thing with the food, or maybe he wanted something else.  It could have been that he was doing it for attention.  Those would have been good guesses, but they were wrong that particular day.  

Sometimes it's the obvious, but when what you're doing isn't working, it might be something less obvious.  This is also a reason why communication is important between parents and teachers.  I was always so grateful when parents would call me (when I was teaching) to let me know that something happened at home, or the child missed breakfast, or that they changed medications.  That information can be very useful when you are trying to decipher why there may be a change in behavior, or why what you used to do doesn't work any more.

Joy Mano
Utah P.L.A.Y. Project Home Consultant
Early Intervention Treatment for Children With Autism